I sit here typing this from the RCH Resource Centre.
What a roller coaster ride we have been on for the last couple of days.
Since my last message we were woken at 5am Sunday morning to a phone call informing us that they were putting Rani on a higher level ventilator. 2 hours later we got another phone call to say that her kidneys had failed and that they needed our permission for a surgeon to put her on dialysis. We were straight up showered and into the Hospital.
It wasn't a very good day Sunday...lots of tears and not very positive as Rani was so sick they didn't think she would make it through the afternoon. BUT (without boring you with the horrific details) our little fighter at about 8pm started to turn around a bit, after being given 2-3% chance of survival for the first time all day there were smiles and John and I actually felt hungry...lol. We had my mum, dad, brother and sister with us for support all day and Johns parents are arriving tonight from Brisbane.
Plus of course the support of everyone with their SMS's, phone call, messages etc.
Today was another stressful day with what we thought was little steps but positive being quashed by her specialist and he arranged a meeting with the Transplant Surgeon, Transplant Co-ordinator and ICU Docs to work out what do with Rani - whether or not it was worthwhile continuing with all the meds. Thankfully they have decided she is worth it and that the little improvements are improvements and they are going to reassess her on a 12 hourly basis.
So in no way are we out of the woods, and Rani is still seriously, seriously ill...but making baby steps towards getting better.
So please keep your prayers, thoughts, fingers, toes crossed because we are sure it is all helping.
I hope this makes sense...i am emotionally and physically exhausted.