What a day.
Started out fine..John went into the Hospital this morning and I stayed home and hung out with Josh and Teagan then at about 2.30 we headed into the Hospital.
Rani was still in a very restless state but John told me that she had had a solid 1.5hrs of sleep, as she didn't sleep really well the night before.
So the kids went home with John and I tried to settle Rani, but her oxygen levels were dropping and her heart beat was increase and her respiration rate jumped from 60 to 80....so our Nurse had the oxygen blowing on her again to try and bring her levels up.
Later in the afternoon a Nurse that had recently left RCH came in to see Rani and give her a birthday present as she worked yesterday and she only got to see restless, upset Rani. Rahter than the happy girl she was used to looking after.
Not long after she left Rani's mouth started to bleed, she is teething...but because her platlettes are so low her blood doesn't clot so it was lots of blood. Then when I looked in her nappy there was blood there as well. So our Nurse decided to ring the Docs to come and see her. The blood in her nappy was from nappy rash and again not clotting. While the Doc was looking in her mouth to try and work out exactly where she was bleeding from Rani was tossing and turning and generally trying to get away from the Doc...and then she just stopped breathing. After firstly telling the Doc she wasn't breathing, then rolling Rani from her back to her side and another 2 times telling the Doc she wasn't breathing, our Nurse suggested the MET call. I had some lovely Nurses giving me cuddles and support which was really appreciated.
Then a MET call was called for Rani's room and the other Doc that was at the Nurses station came in and started bagging her with the mask and bag to try and get her breathing again. ICU charged upstairs and took over and suggested that she be taken downstairs to ICU and intubated. I quickly called John and Mum and John dropped the kids off at Mum and Dad's and rushed into the Hospital.
Once we got down to ICU I was asked to leave while they stabilised Rani and intubated her. First they paralysed her so one she wouldn't feel anything and two so that they didn't have to worry about her moving. Then they put a special tube with a balloon at the end down her throat incase her varices bled, then the ventilator tube. Topped her up with blood, platlettes, vitamin K and lots of other meds. Put a catheta in and also a main line (i think) into an artery in her arm to better manage her blood pressure and other stats.
About an hour after we came down to ICU we were allowed to see Rani and if you ignored the blood on her face and the tubes coming out of her mouth she looked like she was having a beautiful sleep. It was really nice to see her tummy going up and down so nicely without the puffing and straining we usually see.
We are sure that she is now Category 1 nationwide for a transplant, but when we left at 1.30am no one could confirm that it had happened so something we will have to chase up in the morning.
I hope this has made sense it has been a very emotionally draining day. Thanks for the SMS's and emails.