Lets see since my last post it has been one all mighty roller coaster road with our Princess.
FORGOT TO MENTION - Buddah is now a whopping 9.1kg...not all her weight and as you can see from this pic, her poor face looks likes it is going to explode. Plus here is Mum who is in every day and in this pic you can see all the different tubes pumping different meds into her.I have taught John well he took this pic :)
The good news is that she will be moved out of ICU hopefully tomorrow..it would have been today but there are no beds.
I am guessing this will be short but sweet.
OK lets see Tuesday.
Rani is 11 months old today...I can't believe that in one month my little girl will be 1!
Rani was still pretty much slept all day. They became concerned with her platelet count as it is low and she is not clotting well at all. She was given another Albumin tranfusion. Also it was confirmed that she had a UTI which could explain the spikes in her temperature. She had another chest x-ray and heart scan. They were still concerned about her breathing and she still had the oxygen blowing on her.
Rani seems to be getting better. She was more alert and even enjoyed a bath. They are still very concerned about her breathing as she is panting and taking in to much Carbon Dioxide...they are going to watch her and if it doesn't improve the will have to put her on a ventilator. She is also given more antibiotics and a blood transfusion and platelet's transfusion.
Well no need for a ventilator still not 100% but much better than she was. Her spleen is getting huge and ot only pushing into her pelvis but now up her ribs making it even more difficult for her to breathe. But they have taken the oxygen away and seeing how she goes without it. As I said earlier that would have returned her to 5W but there are no beds available. She was given yet another albumin transfusion and a gammaglobulin transfusion to try and help her with her clotting and platelet count. Today we also got a confirmation that she does indeed have a chest infection but unfortunately the bug she has there isn't anything that can be given that magically makes it go away. One of the antibiotics is helping break the phlem off her chest and she is bringing a lot of it up...so hopefully it will continue to clear and she will be finally rid of this dreaded long dragging bug.
So fingers crossed tomorrow she will be back upstairs.
Mum also got to meet a family that have been lovely to us with emails and speaking on the phone to John for hours. They had a little girl that went through the same dramas as Rani and has had her transplant and is healthy and running around. Mum thought it was great seeing them and seeing the outcome of a great transplant.