Well what a day!!! - the understatement of the year
Last night there was blood in Rani's poo. She was checked over and they weren't to concerned, as she has varices that could bleed at anytime.
Well today she had another 3 nappies the same. Her feeds were changed, her meds were changed but I guess the most shocking thing is that as of tomorrow she will be on the Transplant List.
They haven't even finished the work up yet but things are that bad that even though she is not at the weight they want her to be there is no other resource, she needs a new liver now.
So as of tomorrow she goes on the National (Australia Wide) Catergory 2 instead of Victorian listing for a liver. Speaking to the liver co-ordinator today (or picking her brains for 2 hours) she said that is could be anytime from tomorrow that we get the call. She has had calls back in 30 minutes from listing to 2 weeks. So as you can imagine John and I and my family are in a bit of shock, we knew it was coming but thought it was still a while away.
She still doesn't weigh enough and they haven't even finished the work up for her to be listed, but her risk for a bleed is to high and the best way of making her better is with a new liver.
So we are feeling a bit scared, but after our talk with the Liver Transplant Co-ordinator today and trusting completely the Surgeons at the Hospital we are feeling a bit better.
BUT still in shock that it has come around so quickly, but so looking forward to having a healthy girl.