So as of Saturday Rani is officially listed for a Liver Transplant Nationally.
She is doing really well considering she is so seriously ill.
Unfortunately she has lost some weight as they stopped her feeds as they didn't mix with some of the meds that she was given, but today she was put back on her feeds and fat and she had a small gain today.
Unfortunately even though the bleeds seemed to have cleared up, she is still at high risk to have a bleed at any time. So she has one on one Nursing and hourly obs. The only thing that the transplant surgeons are concerned about is her size and lack of weight, but the risk of a bleed (which could be fatal) outweigh the concerns...which is scary either way we look at it.
But she is so happy and so much more energetic than she has been in months which makes it so much harder to come to terms with the fact that she is seriously ill. Although I am so happy that she isn't in major pain and that we still get huge smiles out of her, I think it would be worse if she was crying from pain and there was nothing I could do to make her better.
So we are now waiting for the phone call that the perfect liver has been found and dreading the 15+ hour operation but excited that she will soon be healthy and happy. :)