This is where Rani's central line goes in and feeds her the valuable protiens etc that she needs. Plus of course she still has her tube that the milk goes through. The Central Line has two point, one for nutrients and the other to draw blood, so much easier this way.
This picture shows the different machines that pump Rani full...but makes it imppossible to take her out of the room.
The top two is her milk formula and the other is the TPN feed. The white machine is the pump for her formula and the grey machine is the pump for her TPN.
Down the bottle is another machine with a Fat Emulsion that is also pumped into her Central Line.
Well Rani was in good spirits today.
She had another Albumin Transfusion and I had to laugh when I saw that they had bought in an industrial power board, as the 3 powerpoints above her bed weren't enough for all the differnt machinery pumping different things into Rani...lol
They increased the amount of TPN feeds today but kept the NG Tube feed at 6ml per hour, so she is hungry and actually for the first time in months ate 1/2 a jar of baby food.
She had a weight loss but the Docs weren't to concerned as she gets a large dose of diaretics in the middle of the transfussion to get rid of excess water.
John did the morning shift and I went in later to find Mum and Dad and Josh and Teagan already in the Hospital. John took them home and I stayed. We again have the whole 4 bed room to ourselves, as no one with gastro or throwing up can come in the room, as Rani is very open to any infections and can't afford to get sick.
Today we had a weight gain of 150grams so I am happy.
My sister and her friend came in tonight so I could come home early and spend some time with Josh and Teagan
Have a WONDERFUL MOTHERS DAY tomorrow