Yesterday Rani was nine months old, I can't believe how quickly it has gone!!! and to celebrate Princess Rani decided to pull her Naso-Gastric tube out. Unfortunately due to the severe varices in her throat that even if knocked slightly could bleed no-one wants to put the tube back and because she has been fed this way for so long she won't take a bottle. Thankful she is getting everything from her TPN feeds that go into the vein in her next, so her Specialist said that if there are no bleeds in 7-10 days (as she has stopped again) he will again put a camera down her throat and see how they are going and put the tube down at the same time. The nurse are having a ball...NOT!!!...trying to give her her meds orally...lol
Both John and I had another meeting with the Transplant Co-ordinator after John finished work last night. She has been moved back to a Category 3 - State Wide. We are kind of happy as this means that at the moment she is stable and is able to continue gaining weight, but it also means that she will not be coming home until after the transplant and that could be months and months. It feels some what selfish to think this way, but it affects not only Rani, John and I, but our other 2 and my whole family. It is very exhausting goinginto the Hospital every day, frustrating as she is doing so well atm and hard as John and I just don't get to see Josh and Teagan. Plus it is not fair to ask my family to put their lives on hold until we get the call and expect my parents to keep Josh and Teagan at their house during the week indefinately. I know that they are happy to do it, but we feel bad.
So we are happy that she will be able to gain the weight and having an even higher rate of a coming out of the op, but frustrated as we have no idea when!!
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5 comments:
Hi Mel, glad to hear that Rani has stablised a bit. I know it's hard not to feel bad for leaning on your family, but I'm sure you'd do the same for them Mel and I'm sure they wouldn't have it any other way! I hope you get to catch up with your other gorgeous 2 a bit more over the weekend! Hugs to you all!
wow looks like u guys are having a crazy time over there i wish you the best of luck and i hope that the Princess gets what she needs...
on a ligher note i think it is funny that i am reading a blog from a day that has yet to even happen yet where i am so Hello future... what is it like
=-P yeah and dont feal bad you have to do what you have to do they understand.. -Jim
Mel these are the times that we have to rely on family, it's what families just do love. I'm sure your folks understand, it's amazing how much courage, compassion and strength we can find within ourselves and others when it counts most.
I feel for you mising your older kiddies, I just hope Rani's transplant and recovery happen really soon hon, for her, for you for your whole lovely family!
HUGGLES!
I'm sure your family doesn't even think about doing it, they just do it because they love you and wouldn't want you to feel bad about it. Oh and happy "9 month birthday" to Rani!
Susan
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