The good news is that they still haven't found a fracture in Rani's legs the bad news is that this afternoon she had an X-ray of the lower half of her legs to see if there is one there as she is still screaming when you lift her legs to change her nappy.
Also some bad news for John his blood is not compatable for Rani has is A+1 and needed to be A+2. So both my sister Bec and I know that we are O+ the same as Rani so we are going to start the work up. I wish that neither of us had to do this but hopefully a liver will come up and it won't be necessary for either of us to have the op. Not that we don't want to do it..it will be a killer to not be in the same Hospital as Rani and see her get better. So we will patiently wait.
John and I are off to see the Transplant Surgeon on Monday to discuss everything and actually meet the man that will be saving our daughter. We have seen him in the halls of the Hospital a couple of times but maybe for only 20 seconds. So we are excited but also nervous.
Well nothing much else to say Rani is not gaining a lot of weight compared to what she was. She put on 20 grams in 2 days. But she is 7.78kg...closer to the 8kg that they asked her to be which months ago just seemed like a fantasy.
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3 comments:
I hope they can work out why she cries so much when she's being changed. Poor little sweetheart!
What a lot of decisions your family is having to make, I pray every day that all will be well and that she is home with her family.
Hugs honey!
Love Chrissy xx
Oh, I can't stand to hear of Rani screaming with her nappy changes! I gather they're also looking at the pelvis, etc? I'm sure they are. Poor little sweetheart.
I can't believe the other extremely inconvenient (to say the least) news about you having to move. That is just appalling timing.
And my thoughts are with you regarding the living donor issue, which is very serious. I can also relate to the fact that you and your sister would gladly do it. I'm sure that it won't come to that.
Best regards, and our household continues to barrack for the beautiful Rani.
Oh Mel what a lot to have to cope with at the moment!! I hope that everything works out and I will be thinking of you all!!
Hugs
Anna
xx
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